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People With Haemophilia in Agony for Over a Year: The State Cannot Provide a Medicine for a Few Hundred People

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People With Haemophilia in Agony for Over a Year: The State Cannot Provide a Medicine for a Few Hundred People

There are problems that are invisible to most of the public, but for a few families are a matter of life. People with haemophilia in Macedonia, as was sounded as an alarm at a press conference, have for more than a year been living in genuine agony because of a shortage of the medicine "Factor 8" - the therapy without which this disease cannot be controlled.

Haemophilia is a condition in which the blood does not clot normally, so even the smallest injury can become life-threatening. "Factor 8" is not a luxury nor an extra therapy - it is the medicine that keeps these patients alive and functional. When the quantities are limited to months, patients are forced to wait, to ration and to live in constant fear of what will happen if they get hurt.

And here the institutions cannot hide behind the phrase "healthcare is a complex system". This is a relatively small number of patients with a clear, documented need. When a state cannot provide continuous therapy for a few hundred people with a life-threatening condition, the question is not whether there is money - the question is where it gets lost, and why it is precisely these patients who are always at the back of the queue.

Behind every story like this is a family that wakes up every morning with a calculation - is there enough medicine to last to the end of the month. This is not politics, it is a health service that every functioning state regards as basic. How long will a society leave its most vulnerable citizens to beg for something that is theirs by right?